Bienvenidos a NTG
NTG es una organización sin fines de lucro encargada de garantizar que se tengan en cuenta los intereses de los adultos con discapacidades intelectuales y del desarrollo afectados por la enfermedad de Alzheimer y otras causas de demencia, así como los de sus familiares y amigos.
Nuestra misión es abogar por los servicios y apoyos para las personas con discapacidad intelectual y sus familias que se ven afectadas por la enfermedad de Alzheimer y las demencias.
Colaboraciones NTG
NTG-EDSD
Finalizado
Desde 275 dólares estadounidenses
ADVANCED TOPICS WEBINAR SERIES 2
Active Treatment Across the Continuum for People
with Intellectual Disabilities who are living with Dementia
Each session will be held from 12:00 pm - 1:30 pm ET. Sessions will be recorded.
Registration Fees: General Public: $149 NTG Affiliated Paid Members: $119
November 12, 2024: Strategies for Teams Supporting Individuals in Early-Stage Dementia
December 10, 2024: Strategies for Teams Supporting Individuals in Mid-Stage Dementia
January 7, 2025: Strategies for Teams Supporting Individuals in Late/End-Stage Dementia
February 4, 2025: A Review: Active Treatment Using a Lifespan Lens & Tools to Accomplish This
Breaking News!!!!
The NTG is actively undertaking a grant-funded project to provide training/education and technical assistance on intellectual disability and dementia in alignment with CMS' new GUIDE Model initiative. Contact us for assistance or to set up a training.
NTG and LuMind IDSC Issue Advisory on Prescribing Criteria for Alzheimer's Therapeutics and Publish Report in Journal
The NTG, the LuMind IDSC Foundation, and an international blue ribbon expert panel produced an advisory on adapting drug formulary committed criteria by States so that adults with Down syndrome (and other intellectual disabilities) can be prescribed FDA approved Alzheimer's disease anti-amyloid immunotherapeutics, once they are authorized for use by adults with Down syndrome. A synopsis of the Panel's report has now been published in Alzheimer's & Dementia, the journal of the Alzheimer's Association.
Project ECHO Series on Dementia and Intellectual Disability
The NTG and URI/VCU GWEPs have announced our 10th series of ECHO programs on topics related to intellectual disability and dementia. The URI/VCU/NTG ECHO series for 2025 will begin on April 21st and run every fortnight through to June 16th. The theme is 'Exploring Various Neurodevelopmental Conditions and Aging Neuropathologies.' Individual sessions of this series will address autism, cerebral palsy, epilepsy, and other conditions with or without concurrent intellectual disability. The ECHO series is offered twice a year, is free, and is a practical, case-based /education program for health and social care providers who want to enhance their knowledge, capabilities, and performance related to the care of people with intellectual and developmental disabilities affected by dementia.
More information will be forthcoming in January 2025.
The Gerontological Society of America and the NTG have Created a 'Companion' on Intellectual Disability and Dementia to its KAER Toolkit
The NTG, provider organizations in Ohio, and the GSA collaborated on producing a Companion to the GSA's renown KAER Toolkit. The new Companion focuses on issues relevant to intellectual disability and dementia, providing guidance for health workers, support personnel, and caregivers. The Companion is now available via the GSA website. To access the KAER Companion on Intellectual Disability and Dementia, click on More Info >
NTG Joins the Lumind IDSC Foundation in DS-AD Staging Consensus Project Paralleling the AA/NIA's Alzheimer's Disease Clinical Staging Criteria
The National Institute on Aging and the Alzheimer’s Association (NIA-AA) draft diagnostic criteria on diagnosing Alzheimer’s disease issued at the 2023 AAIC Conference in Amsterdam, NL, have now been updated. The criteria address diagnosing, via biomarkers, Alzheimer's disease in adults, including Down syndrome. To see an Explainer. The updated version has been published in Alzheimer's & Dementia; it was originally released at the Clinical Trials on Alzheimer's Disease (CTAD) conference in October 2023. Comments on Down syndrome were included in the new iteration. (To see Nov. 16th submission.) The new Lumind/NTG Project will examine the concordance of the criteria applications for adults with Down syndrome to the new AA Criteria.
NTG busca nuevos miembros para la junta
The NTG has issued a public policy advisory on applications of the CMS 'Settings Rule; with applications to community-based housing for adults with intellectual disability living with dementia. The advisory covers that adaptations agencies could use to provide HCBS supports in small dementia capable group homes and designing person-centered care plans.
NTG busca nuevos miembros para la junta
The NTG, jointly with the Health Matters Program at the University of Illinois Chicago, issued an advisory on risk reduction and brain health by moderating over-medication among adults with intellectual disability. The advisory, designed to promote healthy brain outcomes, recognizes that over-medicating can have negative effects on physical and brain health, as well as potentially can increase the risk for mild cognitive impairment or dementia. The information provided is intended to lead to a constructive scrutiny of medication use, avoid “medication harm’, and result in positive health outcomes.
NTG Welcomes the Support of the Peter J. Taylor Charitable Trust
The NTG is pleased to recognize the generous support of the Peter J. Taylor Charitable Trust in support of its family assistance and information efforts. New initiatives are underway to expand our focus on supporting families, which include maintaining an on-line monthly support group for caregivers, a new series of informative webinars, and increased involvement in producing family-friendly materials.
NTG busca nuevos miembros para la junta
El NTG está buscando nominaciones para dos puestos en su Junta Directiva. Los miembros de la Junta brindan dirección general y contribuyen con su experiencia a la organización. Las autonominaciones son bienvenidas. Si tiene experiencia y/o interés en la discapacidad intelectual y la demencia y cree en la misión de NTG, considere enviar una nominación. Ir a nuestra página de Nominaciones,donde hay más información disponible. Las nominaciones deben enviarse antes del 20 de septiembre de 2022.
International Summit on ID and Dementia and the NTG Jointly Issue Seminal Report on Autism and Dementia
The NTG was a partner in the 2nd International Summit on Intellectual Disabilities and Dementia, held on October 24-25, 2023 in Toronto, Ontario Canada. The Summit was part of the 50th Anniversary Celebration of the Reena Organization. A report on autism and dementia has been issue by the Summit Secretariat; other reports are forthcoming. The NTG is the host for the International ID and Dementia Summit Secretariat.
Próximos entrenamientos y talleres
Formación y educación de NTG
El NTG ofrece talleres de capacitación sobre discapacidad intelectual y demencia, en los EE. UU. y Canadá. Estos talleres de renombre se basan en los módulos curriculares basados en evidencia de NTG sobre diversos temas relacionados con la discapacidad intelectual y la demencia.
La serie educativa ECHO de NTG es un programa educativo gratuito, práctico y basado en casos para proveedores de servicios sociales y de atención médica que desean mejorar sus conocimientos, capacidades y desempeño relacionados con el cuidado de personas con discapacidades intelectuales y del desarrollo afectadas por la demencia.
Apoyo familiar NTG
El NTG está comprometido con los cuidadores familiares, así como con los profesionales de servicio directo, que apoyan a las personas con discapacidad intelectual y demencia. Reconocemos que muchos miembros de la familia brindan atención diaria directa a su ser querido, mientras que otros están involucrados indirectamente. No importa cómo brinde atención, el trabajo que hacemos es en apoyo de todos los cuidadores familiares.
El NTG ofrece un grupo de apoyo en línea mensual gratuito para miembros de la familia que cuidan a un pariente adulto con identificación y demencia. El grupo de apoyo se reúne el primer jueves de cada mes a las 8 p. m., hora del este.
Formación y educación de NTG
Biblioteca de publicaciones
¿Busca información sobre la demencia y diversas afecciones, como el autismo o la parálisis cerebral? Qué pasasíndrome de regresiónySíndrome de Down?
Mantenemos páginas de información, que ofrecen resúmenes de investigaciones recientes, que cubren estos y otros temas relacionados. Vaya a nuestra biblioteca completa para filtrar en las categorías que le interesen.
Publicaciones destacadas
click on image to open PDF
My Thinker's Not Working
Resource document
Physician's Quick Guide for Using the NTG-EDSD
Resource document
Examining Adults with Neuroatypical Conditions for MCI/Dementia During Cognitive Impairment Assessments: Report of the Neuroatypical Conditions Expert Consultative Panel
Resource document
FAQ on Dementia and ID
Resource document
Community Care and Supports for People with Intellectual Disabilities Affected by Dementia
Resource document
Bibliography on Dementia Care Management and Intellectual Disability
Working bibliography
Involúcrese con el NTG
Únete a la NTG.
Hazte miembro
Los miembros de NTG reciben beneficios exclusivos, que incluyen:
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registro con descuento para talleres y seminarios web
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oportunidades de establecer contactos
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servicios informativos gratuitos
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oportunidades de liderazgo
Individuos - Cuota anual de $50
Estudiante/jubilado/miembro de la familia: cuota anual de $25
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