Referencias de problemas de identificación
Dementia Care Settings & Dementia Care Plans
Many professional organizations, governmental entities, and clinicians and providers have issued guidelines or practice suggestions related to older adults with intellectual disability who may be suspected of have an additive cognitive impairment in later age. These are generally directed toward clinicians who may be asked to provide an assessment or diagnosis of whether the impairment is related to a brain disease, such as Alzheimer's, or another cause. Some provide specific information for those clinicians already familiar with intellectual disability and some provide general overview information for general practitioners and other clinicians who may intermittently examine an adult with an intellectual disability. Noted further below are some useful resources from various sources around the globe.
Dementia Care Settings
NTG Commentary on the CMS ‘Settings Rule’ and Applications for Housing Adults with Intellectual Disability Living with Dementia
Care settings for adults with dementia vary according to need and purpose. Here we explore the provision of small dementia capable group homes for adults with intellectual disability living with dementia and offer our thoughts on such home with respect to the CMS's 'settings rule.' Our advisory looks at the underlying purpose of the housing and how thoughtful planning can enrich the person's life and maintain skill sets. We provide some thoughts and recommendations for structuring such group home programs so as to maintain compliance with the 'settings rule.'
Dementia Care Plans
Providing a well thought-out plan for organizing services and supports for an adult with intellectual disability living with dementia, whether at home, with mates, or in a dementia capable setting is important. Such plans need to account for the person's choices and needs, as well as their existing capabilities. Also considered must be duration and expectations of dementia in terms of the type of dementia, the person's co-incident conditions, and emotional and physical health, diet, and physical care needs
NTG-EDSD and Care Planning
For two informative presentations on the use of the EDSD and dementia care planning, go to this page.
Otros recursos para profesionales
Physician's Quick Guide for Using the NTG-EDSD
A new informative NTG-EDSD guidesheet is now available for primary care physicians who may be seeing an adult with an intellectual disability with possible cognitive decline. The guide explains what the NTG-EDSD is and what information it contains. How to use the quick guide: (1) The NTG-EDSD is designed to help a clinician be informed about changes his/her patient may be experiencing. (2) As an agency staff or family member you should complete the NTG-EDSD based on your knowledge and observations of an adult with an intellectual disability. (3) Bring the NTG-EDSD with you to the medical visit and also give the examiner the Quick Guide. (4) Be prepared to have some questions and discuss your notations on the NTG-EDSD with the examiner.
Practical Guidelines for Care of Persons with Down Syndrome and Dementia
This practical guideline for persons who provide supports and services for people with Down Syndrome and dementia was developed by Dr. Gerald Kerins at the University of Connecticut Health Center (May 1998]. It was posted by the Connecticut Department of Developmental Services.
Talking About Dementia: A Guide for Families, Caregivers and Adults with Intellectual Disability (RI Caregiver Guide Supplement)
This complementary supplement to the Rhode Island Caregiver Guide focuses on how to approach the conversation about someone with an intellectual disability experiencing cognitive changes and possibly having dementia.
Things to Know About Health (RI Caregiver Guide Supplement)
This 17-page guide provides introductory information for families and others providing supports to an adult with an intellectual disability around aging, health, and signs of dementia. It covers information about diagnosing, attending to behaviors, creating a wellness environment, and offers contactable resources.
