End-of-life and Down syndrome: A companion guidebook to aging and down syndrome: A health and well-being guidebook

This guidebook provides guidance for the crossroads and decisions that arise in later life and at the end of life. The information covered aims to be practical and supportive, with guidance and resources to help families, caregivers, care partners, and others. The intent is to help readers recognize and understand the
reasons that planning for your own future and having a backup plan for care of an adult Down syndrome at the end of life, including where dementia is present.