NTG-NDSS Advisory on GUIDE and the Inclusion of Adults with Intellectual Disability & Down Syndrome and Dementia

This advisory provides a succinct summary of key elements of the GUIDE program that bear exploration with respect to the inclusion of adults with eligible beneficiaries with intellectual disability, including Down syndrome, living with dementia and their caregivers. Noted are some of the basics and intents of the GUIDE program, a rationale for a focus in creating beneficiaries with Down syndrome (and other intellectual disabilities), commentary on training of navigators, use of instruments for assessing dementia impact and recommendations of locating beneficiaries and creating alignment with GUIDE Participants.